Stephanie Klein Greek Tragedy

Phil and I left the hospital last night for an hour.  We were both breathing a unified sigh of relief.
Here’s what it’s not: TB, Toxoplasmosis, a syrinx.  A syrinx is INSIDE the spinal cord.  Lucas’s cyst is outside the…

WE STILL HAVE NO ANSWERS.  His platelets are fine.  His uric acid is fine.  His LDH is high, at 506.  We’ve been waiting all day for the oncologist to interpret these results.  Maybe they’re fishing because they simply don’t know…

UPDATE #1: The results of the spinal MRI are in.  There is something obstructing the flow of spinal fluid.  They showed me the MRI.  There is a narrowing of the spinal fluid in the neck area, and then a bulge…

I need to vent.  I don’t like talking on the phone because then I have to hear tone, those small sounds that seem to make it across the phone lines.  A sigh or a slight tsk.  The heaviness in words…

He’s asleep right now, in the hospital bed beside me.  Almost an hour ago, they did a spinal tap.  His MRI looked fine, but radiology saw an enhanced area that the neurologist seemed to believe was nothing.  It might mean…

He’s in the hospital again. 
Wednesday we had the 20 minute EEG, then the neurologist came to give Lucas a physical exam.  I had to remind myself to breathe.  Phil and I were terrified, basically wondering if we even wanted…

When it’s me at the doctor, for my own body, if there’s any bad news strung in with hope, I’ll cling to the bad, certain I’ll meet my doom.  But when I left Lucas’s neurosurgeon’s office, every warning about the…

"I haven’t really reached the anger stage" I said to my dad this morning.  But then I thought about it.  So not true.  A reader emailed me today.  Said she’s "been following the blog for years" and then, I expected…