Stephanie Klein Greek Tragedy

Photo taken this morning…more on my Flickr page>>
He’s happy and home now.  Smiling, cooing, cute in a way I’ve never seen.  More active, interactive, and joyful.  I’m happy in those moments, when I’m beside him, witnessing just how okay…

Phil and I left the hospital last night for an hour.  We were both breathing a unified sigh of relief.
Here’s what it’s not: TB, Toxoplasmosis, a syrinx.  A syrinx is INSIDE the spinal cord.  Lucas’s cyst is outside the…

WE STILL HAVE NO ANSWERS.  His platelets are fine.  His uric acid is fine.  His LDH is high, at 506.  We’ve been waiting all day for the oncologist to interpret these results.  Maybe they’re fishing because they simply don’t know…

UPDATE #1: The results of the spinal MRI are in.  There is something obstructing the flow of spinal fluid.  They showed me the MRI.  There is a narrowing of the spinal fluid in the neck area, and then a bulge…

I need to vent.  I don’t like talking on the phone because then I have to hear tone, those small sounds that seem to make it across the phone lines.  A sigh or a slight tsk.  The heaviness in words…

You’re sleeping now.  They tell me I need to wake you in a few minutes, to feed you, to ensure you get your fluids.  They’ve actually upped you to 24-calorie formula.  Who are you?  I can gain weight just typing…

He’s asleep right now, in the hospital bed beside me.  Almost an hour ago, they did a spinal tap.  His MRI looked fine, but radiology saw an enhanced area that the neurologist seemed to believe was nothing.  It might mean…

He’s in the hospital again. 
Wednesday we had the 20 minute EEG, then the neurologist came to give Lucas a physical exam.  I had to remind myself to breathe.  Phil and I were terrified, basically wondering if we even wanted…